Rare diseases Summit 2024 advocates for patients empowerment and policy reform
Reading Time: 5 minutesBANGKOK: Rare diseases impact the lives of millions of people despite being rare. In Southeast Asia, an estimated 45 million people, approximately 9% of the region’s population, suffer from rare diseases. The Medical Genetics and Genomics Association, Medical Association of Thailand, and Thai Rare Disease Foundation joined hands with Takeda to host the 2nd Southeast […]
NGO Spotlights challenges faced by LSD patients, seeks funds
Reading Time: 2 minutesTHE MALAYSIA Lysosomal Diseases Association (MLDA) unveiled its latest fund-raising effort recently, working with the creative talents of Fusion Wayang Kulit to shine a spotlight on the many difficult circumstances faced by patients with lysosomal storage diseases (LSDs), which involve many challenges, from diagnosis to treatment. LSDs are rare metabolic disorders that primarily affect children, […]